This report highlights some key considerations to support those using CIHI data for analyses of drugs for rare diseases and explores opportunities to improve data to support these analyses.
Related Organizations
- Pages
- 21
- Published in
- Canada
Table of Contents
- Table of contents 3
- Acknowledgements 4
- Introduction 4
- Background 4
- About this report 4
- Considerations when using CIHI data for rare disease analysis 5
- Can we identify patients? 5
- How do patients interact with the health care system? 7
- How do disease characteristics impact analysis? 10
- Opportunities to enhance analysis for rare diseases at CIHI 13
- Conclusion 16
- Related resources 16
- Appendix: Overview of selected CIHI databases 17
- References 19
