cover image: October 20, 2021 - Jessica Fehrenbacher, Myrna Norman, Jerry Gosling

20.500.12592/0kx73f

October 20, 2021 - Jessica Fehrenbacher, Myrna Norman, Jerry Gosling

29 Sep 2021

• Consult with people with different kinds of disabilities to identify strategies that support people living with dementia to be meaningfully involved in decision-making • Create resources for teaching healthcare stakeholders how to support people living with dementia to participate as much as possible in decisions that impact their lives. [...] • The likelihood of dementia increases with age • 1% of those under 65 years of age • 2.5% of those between 65 and 74 • 30-40% of those over 85 years of age • 1 in 11 Canadians over the age of 65 (approx. [...] : - Person living with a disability “Stereotypes hinder a lot of people • Navigating the system in their decision making, because • Limiting policies / laws they read the diagnosis or whatever • Lack of support options on a piece of paper and • Stigma & assumptions automatically assume something • Language, communication, & about that person.” cultural barriers - Person living with autism “[My fri. [...] And I had to factor • Personalities that in all the decisions that were • In whose best interest? made.” • Dementia progression and decision making - Care partner • Communication • Recording • Advance decisions “I like to think about, well, who can I • Enough time talk to about this issue about this • Visuals decision, but I really do give a lot of • Clarifying questions thought as to who to talk. [...] [We] also need a • Respect rights greater understanding of different • Increase accountability communication needs and styles and • Increase training not to stereotype people as a result of • Increase time that.” • Increase access to resources - Person living with a disability • Be patient and supportive • Don’t interrupt • Give the person time to express themselves • Don’t talk about the person a.

Authors

Alec Regino

Pages
31
Published in
Canada

Tables

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