Multiple Sclerosis Advisory Panel recommendations : To improve care, support research and education, and increase access to clinical trials

The Panel would also like to thank the staff and volunteers from the Multiple Sclerosis Society of Canada for their support and contributions to this document, and in particular Erin Kuan, president of Manitoba and Saskatchewan Divisions, and Dr. [...] Specifically, the government asked the panelists to produce recommendations that would provide: • support and/or education services to improve the care experience of Saskatchewan people living with MS, their families, and their caregivers; • support for MS research and education in Saskatchewan; and • opportunities for Saskatchewan people living with MS to participate in credible clinical trials t [...] February 2016 15 Recommendations Introduction The MS Advisory Panel was convened to provide specific recommendations to the Ministry of Health to ensure that: 1 2 3 Saskatchewan Saskatchewan Saskatchewan people, their supports MS people with MS families, and their research and are eligible to caregivers have opportunities participate in access to support to enhance MS credible MS clinical and educ [...] In addition to serving care and with existing researchers to provide monitoring needs, support should be provided opportunities for Saskatchewan people for the registry to be used for the purpose of living with MS to be included in trials recruiting persons interested in participating without having to travel beyond the in clinical trials or for survey studies. [...] The leadership of a future MS Clinical Research Chair along with the implementation of a provincial Saskatchewan MS registry and enhancement of the clinical trial unit could People impacted by MS should not have serve to focus Saskatchewan research and to wait more than six weeks to see a give people living with MS opportunities to neurologist.