This report aims to inform public health policy makers and decision makers in their efforts to build better coordinated, equitable, and effective public health surveillance systems across Canada. It reviews literature on public health surveillance in Indigenous communities to identify issues that need to be considered and examples of best practices.
Authors
- Pages
- 72
- Published in
- Canada
Table of Contents
- References 64
- CONCLUSION 63
- RECOMMENDATIONS 60
- INDIGENOUS DATA SOVEREIGNTY AND GOVERNANCE 45
- Indigenous control of health information systems 46
- Indigenous data governance in the digital age 48
- Best practice examples 52
- First Nations Regional Health Survey 52
- BC’s First Nations Health Authority 54
- Institute for Clinical Evaluative Sciences 56
- Our Health Counts urban Aboriginal study 57
- Tui’kn Partnership 58
- Qanuippitaa? National Inuit Health Survey 59
- HISTORICAL CONTEXT 7
- METHODS 6
- Introduction 4
- CHALLENGES TO EXISTING MAINSTREAM PUBLIC HEALTH SURVEILLANCE SYSTEMS 11
- Population coverage 14
- Use of Indigenous identifiers 14
- Geographic coverage 21
- Data quality concerns and resulting biases and challenges 22
- Appropriateness of existing data sources for Indigenous communities 24
- Indicator frameworks 26
- Western-based indicator frameworks 26
- Indigenous perspectives of health and well-being 28
- Applicability and validity of Western-based indicator frameworks in Indigenous contexts 28
- Indicator gaps 32
- Engaging Indigenous people in indicator development 34
- Indigenous-specific indicator frameworks 36
