• Accessing, monitoring and coordinating health and social services “I as a caregiver would not need support if I wasn’t constantly needing to: make phone calls, spend inordinate amounts of time documenting, arranging and attending meetings, and writing letters in order to access necessary services for my mother” (p.14). [...] Well you need the referral, but you don’t need this and you need that and you’re constantly going in one big circle because (public) home care didn’t want to be responsible, and then you wouldn’t get what you needed because it was a walk-in doctor and not a regular doctor, and then you had to go and get the pressure tension done to make sure that the skin could handle it. [...] I take any feelings that would really bring me down and make this a lot harder and I just kind of put them aside in a box and I close the lid…” “I work in customer service and I don’t like being a bitch to other people…. [...] • In contrast to coverage of LTRC which tended to highlight issues of profit, coverage of home care did not clearly distinguish nor present profitization in the sector as potentially problematic • ”Inequities of homes paces and impacts on families are obscured, with homes characterized as idealized places of dignity and (relative) safety.” Trust and Long Term Care • Trust in individuals or systems. [...] Trust in the health system: An analysis and extension of the social theories of Giddens and Luhmann.
Authors
- Pages
- 25
- Published in
- Canada
Table of Contents
- Navigating services in a context of mistrust: family perspectiv 1
- Introductions 2
- Diapo 3 3
- Manitoba Caregiver Consultations, 2012 4
- Qualitative interview study (2014-2016) Funk, Dansereau & Novek 5
- Example (IRPP report) 6
- Examples (Funk, Dansereau & Novek, 2019) 7
- Examples: emotion and identity work (Funk & Hounslow, 2019a, us 8
- Examples: emotion and identity work (Funk & Hounslow, 2019a) 9
- Examples: moving towards activism? (Funk, Dansereau & Novek, 20 10
- IRPP report (2019) 11
- 22 formal system navigators – role interpretations (Funk & Houn 12
- Future steps… 13
- Diapo 14 14
- Erosion of Trust (pre-pandemic) 15
- COVID-19 - widespread erosion of trust in LTC 16
- Fall 2019 (n=2500) compared to Fall 2020 (n=1009) 17
- Yamamoto et al. (2023) – 56 news articles (March 2020-March 202 18
- Trust and Long Term Care 19
- Impacts of lack of trust, for carers 20
- Current SSHRC-funded study of diverse family carers (2023-2024) 21
- Navigation challenges + mistrust 22
- Nurture/preserve trust through quality, relational, equitable s 23
- References 24
- Diapo 25 25