ACTION - HEALTH DATA GOVERNANCE AND ETHICS

WASTEWATER-BASED SURVEILLANCE FOR PUBLIC HEALTH: KNOWLEDGE TO ACTION S E R I E S WBS RESOURCES AND TOOLS HEALTH DATA GOVERNANCE AND ETHICS Health data governance is a component of information governance that refers to the overall management, collection and use of health data. [...] Nowhere is the power and importance of control and oversight of health data more apparent than in the experience of Indigenous people and communities in Canada. [...] WASTEWATER-BASED SURVEILLANCE FOR PUBLIC HEALTH The importance and power of the values Data Sovereignty selected to guide data governance can and Indigenous be seen in how perspectives are slowly shifting from a focus on data about Peoples Indigenous peoples to data that tells the stories of Indigenous peoples – who they are and where they feel they need to go. [...] 2 A KNOWLEDGE TO ACTION SERIES HEALTH DATA GOVERNANCE AND ETHICS Principles of Data Sovereignty The First Nations Principles of OCAP® partly because of the improper use of provide a foundation for approaching their information witnessed over the the ethical governance of population years. [...] This requires public health practitioners to attend to communication as a key dimension of the work to ensure: • Adequate communication of the intents and purposes of the surveillance activities.