Thus, for those at an increased risk of developing dementia, delaying its onset may also improve quality of life and reduce the personal, family and societal costs of care.11 Included in the mandate of supporting all people living with dementia is the importance of ensuring that the lives of caregivers are valued and supported, the quality of their lives is optimized, and their experiences are wel. [...] The 2023 annual report highlights the progress that has been made towards achieving the objectives outlined in the strategy, including the improvement of the quality of life of people living with dementia and their caregivers.12 Compared to 2018-2019, the percentage of caregivers of people living with dementia experiencing distress remains higher than the rates amongst other caregivers. [...] Outlined in the terms of participation was an explanation of the purpose of the study, including the creation of this report; what involvement in the survey will require, including responding to multiple choice and written questions, and requiring roughly 15 minutes to complete; risks with participation, including the personal and, at times, upsetting nature of the questions; benefits to participa. [...] Included in the national strategy’s mandate of supporting all people living with dementia is the importance of ensuring that the lives of caregivers are valued and supported, the quality of their lives is optimized, and their experiences are well understood. [...] The funders had no role in the design of the study; in the collection, analyses, or interpretation of data; in the writing of the manuscript, or in the decision to publish the results.
- Pages
- 16
- Published in
- Canada
Table of Contents
- 1.0 Introduction: 3
- 1.1 Impact on the Mental and Physical Health of Caregivers 3
- 1.2 Financial and Employment Considerations for Caregivers 3
- 1.3 The Problem 4
- 2.0 Methodology and Materials 4
- 2.1 The Emergence of Canada’s National Dementia Strategy 4
- 2.12 Highlighting the Caregiver Experience in Canada’s National Dementia Strategy 4
- 2.13 A Dementia Strategy for Canada: Together We Achieve- 2023 Annual Report 5
- 2.2 Study Design 6
- 2.3 Survey Design and Recruitment 6
- 2.4 Survey Analysis Process 6
- 2.5 Ethical considerations 6
- 3.0 Survey Results 6
- 3.1 Demographic Composition of Caregivers 6
- 3.2 Understanding the Care Context 7
- 3.3 Caregivers’ Employment and Financial Status 7
- 3.4 Caregivers’ Use of Supportive Resources 8
- 3.5 Responsibilities as a Caregiver 8
- 3.6 The Impact of Caregiving on Lifestyle 9
- 3.7 Caregivers’ Coping Strategies and Support Systems 9
- 4.0 Discussion 10
- 4.1 Statement of Principal Findings 10
- 4.11- Family and Community Care 10
- 4.12- Resources and Supports Available to Caregivers 11
- 4.13- Beyond Burden: The Complexity of Providing Care 12
- 4.2 Comparison of Findings to Canada’s National Dementia Strategy 13
- 4.3 Study Limitations 13
- 5.0 Project Implications and Future Research 14
- 6.0 Conclusion 14
- References: 15
