Optimizing care for patients with pustular psoriasis Research Report and Summary from National Policy

widely accessible and that current patterns of care delivery and financing may be a disservice to patients Of all forms of psoriasis (pustular and plaque), and create worse experiences for patients and care providers. [...] → The need to co-create Canadian clinical Because of the rarity of this condition, frontline consensus guidance with patients and with healthcare practitioners may be less aware of its a focus on the patient experience presentation and patients may receive inaccurate → The need to develop and finance networks to support excellent care – providing a diagnoses and treatment. [...] Ill-defined goals and the lack of an ability to achieve them may lead to patient dissatisfaction, 10 Related reference: www.workingitout.ca A report on the experiences of people with psoriatic disease in the Canadian workplace 11 Canadian Psoriasis Guidelines Addendum Committee et al., “2016 Addendum to the Canadian Guidelines for the Management of Plaque Psoriasis 2009,” Journal of Cutaneous Medi. [...] o In addition to using a rigorous approach to the identification of evidence and values to support recommendations in clinical guidance, any new guidance will need to involve patients and fully characterize the patient journey, in keeping with new international standards about involving patients and the public in clinical guideline development.28 o Given new standards in the approach to guideline. [...] Key areas for discuss are in the following three areas: • Education and awareness of community, based dermatologists, intensivists, internists and hospitalists • Creating centres of excellence for care, hub and spoke models, and the use of tele-dermatology • Creating Canadian clinical consensus guidance for how to recognize and treat pustular psoriasis The purpose of this discussion will be to bri.